KNOW A YOUNG KIWI WHO'S GOING THROUGH HELL – OR ONE WHO'S HELPING OTHERS OUT OF A HELLISH SITUATION?

As a young-at-heart and fun-loving Kiwi-owned business, HELL loves to see young New Zealanders doing well. So when we hear about kids having a tough time, we’ll try to make a difference wherever we can.

 

That’s why Satan’s Little Helper was sent on his quest to cut a break for good young souls struck down by the big guy in the sky.

 

We also know there are many others out there fighting the good fight, and so we’ve launched Satan’s Biggest Little Helper to recognise under-23-year-olds going above and beyond to help create a better future for others.

 

If you know of any under-18s worthy of un-divine intervention, or would like to recognise the hard toil of an under 23-year-old who’s gone the extra mile, nominate them now and SLH will see what he can do to help and support them.

NOMINATE someone for Satan’s Little Helper’s Services Click Here

All Posts

  • Jumping for joy!

    Eight-year-old Chloe Crump’s life revolves around physiotherapy and the constant battle to keep her lungs clear of mucus.

     

    Chloe has bronchiectasis, which is as nasty to a kid’s lungs as it is to pronounce. Bronchiectasis causes lungs to become damaged and scarred, while mucus build-up breeds infection-inducing bacteria. She’s also been diagnosed with asthma, autism and ADHD.

     

    Chloe goes to regular school part-time and to Northern Health School once a week – one of three such schools in New Zealand, which support students dealing with health-related challenges.

     

    Chloe enjoys school and loves writing, but the energy it takes to breathe can be exhausting, while being on the spectrum can make life overwhelming.

     

    “She gets really sick,” explains mum Rachel. “Two months ago, she needed two-and-a-half weeks of IV antibiotics and spent 10 days in hospital.”

     

    One way to keep her lungs clear of nasty bacteria is via a nebuliser, which is used twice a day when Chloe is healthy and up to five times a day when she’s not.

     

    For an adult, being forced to have up to five physio sessions a day would be hard. For an eight-year-old, the tedium is magnified because it’s so boring when there are so many other fun things that could be done instead.

     

    One of those fun things is playing on a trampoline.

     

    “For kids with bronchiectasis, having a good trampoline is like gold. It’s one of those things you have to have,” says Rachel. “The bouncing helps trigger a cough reflex and that can loosen the mucus in her lungs, so it’s a really good activity to help her.”

     

    Chloe used to have one to play on, but wear and tear made it dangerous. Ripped pads, a broken net and an unsafe surface had Rachel scared her daughter would go through the floor.

     

    Once Satan’s Little Helper found out how much a new trampoline would help Chloe, there was only one thing to do – buy her a new one!

     

    “For her to have access to a trampoline and the ability to use natural physio to balance out the medical physio means the world to us,” says Rachel.

     

    “If Chloe doesn’t do her physio, she won’t expel the mucus as she should and she’ll get more infections, the disease will progress and in a worst case scenario, lung transplants are considered.”

     

    Chloe loves the trampoline. She can do flips and often plays on it with her friends. Her big brother Andy has a trampoline scooter and uses it to practise his tricks on it, too.

     

    Her autism can make it difficult to maintain long-term friendships, but Chloe still loves the company of other kids. HELL is only too happy to have provided a way to keep her lungs healthy and a place to hang out with her mates.

     

    We’re all jumping for joy!

     

    Read More +
  • From bum shuffling to a balance bike

    When a friend tipped Amanda Johnson off about Satan’s Little Helper, she knew she had to apply on behalf of her two-year-old son Austin.

     

    Austin has a condition called colobomas, which means the structure of his eye failed to form properly in the womb. Colobomas left him with restricted eyesight and teardrop shaped pupils – a bit like cleft palate for the eyes.

     

    At first doctors believed Austin would only be able to see light and dark shades, but his vision is a little more advanced than that. However, it’ll never be fully functional and he’ll need aids such as braille and a cane for the rest of his life.

     

    That hasn’t stopped him from thriving, however. Austin is at pre-school two mornings a week and really enjoys it.

     

    “He loves it, just loves it,” says Amanda. “The teachers say he’s the most settled kid there. He loves the tunnel outside; he will spend an hour in there going back and forth.

     

    “He likes the other kids, and the teachers say it is good for them, because Austin is teaching them to be more patient. It’s good for everyone.”

     

    His poor eyesight means Austin still doesn’t feel confident on his feet, despite being nearly three years old. He prefers the safety of the floor and gets around by shuffling on his bum.

     

    “He knows that when he’s on the ground, bum shuffling, he’s safe,” explains Amanda. “Being on his feet is a whole different world and he’s a bit more nervous. He’s capable of walking, but he’s got to get all his confidence to do that to know he’s safe.”

     

    One of the tools his orientation and mobility therapist suggested to improve his confidence was a balance bike. Once Satan’s Little Helper (SLH) heard that, we knew we had to get one for Austin.

     

    Amanda says: “He really likes his bike! He was straight on it, which really surprised me because he’s so stubborn and doesn’t always like new things. He’s been whizzing around the place on it and he’s a lot more confident now.”

     

    Because life shouldn’t just be about hard work and effort, SLH also sent a xylophone to get Austin’s creative spirit flowing. Amanda says it’s working!

     

    “He absolutely loves the xylophone! He’s always signing or tinkering on it – at the moment it’s Baby Shark. He takes the xylophone with him everywhere he goes.”

     

    Austin gets help from his Blennz Resource Teacher: Vision (RTV) and from his Blind Low Vision NZ every three weeks. Blennz is a national network of educational services for blind, deafblind or low vision children and young people. The Blind Foundation is New Zealand’s leading provider of vision rehabilitation, providing practical and emotional support for people with vision loss.

     

    Amanda says they’ll both notice improvements in his confidence during their next visit.

     

    “The O&M and RTV will notice a big difference in Austin after he’s spent time on the balance bike.”

     

    If Austin keeps improving and gaining confidence, it hopefully won’t be long until the balance bike banishes his bum shuffles for good!

    Read More +
  • A gorilla a day keeps the doctor away

    Leeten Young is a happy, creative eight-year-old who loves Minecraft and animals. He’s also got Ehlers-Danlos Syndrome (EDS), which is pretty limiting when you’re a kid trying to muck about with everyone else your own age.

     

     

    Ehlers-Danlos Syndrome effects connective tissue in various ways. People who have it often don’t show visible symptoms and can slip through cracks in the support system.

     

    “We had a really tough two years with lots of hospital visits,” explains Leeten’s mum, Stacey. “He’s also had a hard time at school, because he can’t keep up with the other kids.

     

    “His body doesn’t regulate his temperature properly, so he gets really, really cold – so cold it physically hurts him – or really hot. He also bruises incredibly easy and gets really itchy. He’s also super flexible, which puts him at risk of his joints dislocating.”

     

    EDS patients who bruise easily are at risk of picking up blood clots under the skin, while unstable joints cause frequent pain. Fatigue is almost universal among sufferers of Ehlers-Danlos.

     

    Leeten didn’t learn to walk until he was just over two years old and suffers from ankles that turn in on themselves. He sees a rheumatologist in Christchurch as well as a physio and a dietitian, who put him on a weight-gain diet (which he loves, because he’s allowed to eat high-calorie foods like ice cream and chocolate every day!).

     

    While Leeten can’t do the physical things the other children do, that hasn’t held him back. He’s obsessed with Minecraft, loves writing and goes through a drawing pad every week.

     

    Documentaries about animals keep him and Stacey entertained on the weekend; David Attenborough is a family favourite.

     

    When Stacey let Satan’s Little Helper know about Leeten’s condition, and told us about his love for animals, we knew we had to do something to put a smile on his face. With those two facts in mind, there was only one solution! We organised an annual pass to Orana Park Wildlife Park for him and his mum.

     

    Leeten’s already been once and plans to make the most of it this summer.

     

    “I loved it, the zoo is one of my favourite places to go because I love animals,” he says. “The best thing I saw were the two gorillas and we’ll see the kiwis next time.

     

    “I can’t wait to go back as soon as it’s nice! If I had the pass for the whole time I was alive, I would probably go every day in summer!”

     

    It’s too early to tell whether a gorilla a day will keep the doctor away, but at least Leeten has a way of doing something he loves.

    Read More +
  • Satan and Spidey Suit Up

    One morning Frankie’s mum Jess noticed a lump on her daughter’s lower back and took her to the emergency room. What doctors found rocked their foundations.

     

    Imagine the pain of hearing your two-year-old has a cancerous tumour and needs urgent treatment that will be tough on Frankie, Jess and the whole family.

     

    That has been the reality for Frankie, her little brother Sal, mum Jess and dad Steve. Frankie has weekly chemo and tests, plus trips every three weeks to Auckland’s Starship Hospital – an eight-hour drive.

     

    “Every week they are going for chemo and blood tests and every three weeks they have to travel from Hawke’s Bay up to Starship for treatments and scans, which makes any sort of routine or normality impossible,” says Jess’s best friend Aimee.

     

    Her illness isn’t what defines Frankie. Despite it all, she’s retained everything that makes her a great kid. Frankie is still the life and soul of the place - she is “hilarious”, says her mum - and is packed full of the type of sass that only three-year-olds can get away with.

     

    Frankie also loves cats, gardening, baking and Spider-Man. Those who love her are doing what they can to make sure she still has fun and finds joy in life, despite her situation – which is why Aimee approached Satan’s Little Helper to see what we could do, which instantly got our spidey senses tingling.

     

    We upgraded her old ‘tatty’ Spider-Man suit and sent along some Spidey colouring-in books and stickers as well.

     

    “She is loving them!” says Jess. “She absolutely loves stickers, so has pasted those to numerous surfaces as well as colouring in lots of Spidermen. Her suit is certainly an upgrade from her last one.”

     

    Thankfully, the family are taking things on the chin and making the most of a situation that would cause many to crumble while Frankie is responding to treatment like the tough little soldier she is!

     

    “At the moment she is doing really well, she is taking chemo like a champ, getting good results from her blood tests and MRI and is happily on schedule for surgery,” says Jess.

     

    It’s going to be a long road to recovery as Frankie’s has years of treatment ahead of her. But if she faces her challenges in the same style she’s already done, it won’t be long until this story has a truly happy ending.

    Read More +
  • Making a splash

    When two-year-old Caydence Rewi was diagnosed with a severe neurodevelopmental impairment called CDKL5 late last year, she was forced to spend a lot of time away from her loved ones. To give her a chance to make up for lost time, Satan’s Little Helper (SLH) organised a trip to Splash Planet for the family.

     

     

    CDKL5, which stands for cyclin-dependant kinase-like 5, is a rare X-chromosome linked genetic disorder that results in early onset seizures and inhibits normal brain development.

     

    Caydence is the youngest of eight sufferers in the whole New Zealand and one of only 1,000 in the world! She experienced her first seizure at eight weeks old and was initially diagnosed with epilepsy before further testing revealed her condition.

     

    “I nominated Caydence to SLH, because I really felt she and the family deserved a treat,” says Aunt Ellen Hatcher.

     

    “We spent most of last year fundraising $3,500 for Caydence to receive specialised treatment at Timmermans Therapy Clinic in Adelaide. The treatment went really well, and they now have a therapy plan in place for Caydence to continue to get stronger every day.”

     

    To celebrate the good news and reward Caydence for her bravery, Satan’s Little Helper sent the family off to enjoy a day of activities together at Splash Planet.

     

    “Caydence loves the water and it’s nice for her to have some time with her sisters. Thank you so much to SLH for this wonderful opportunity — family fun times together rarely happen for us! Now we have another great family memory to add to our album.”

    Read More +
  • Satan’s Little Helper can’t perform miracles, but has been known to get people out of a tight spot. Check out how Lucifer’s little mate helped these unfortunates in their time of need.

    MORE UN-DIVINE INTERVENTION +

  • IHC’s Project Active trains it's youth members to become self-sufficient, so when they asked us for a few pizzas for a party, we figured a simple treat wouldn’t quite do the trick. Check out what happened!

    MORE ACTIVE IN HELL +

  • Feeding Brains

    They say the devil finds work for idle hands, but we’ve flipped the script by making that work educational. Our plan kicked off with a Reading Challenge to get more books in kids’ mitts.

    Read for yourself here!   

     

  • Hell’s supported charities and foundations for a long time. When a worthy cause grabs our attention, we’ll throw our weight behind it.

    MORE SATAN'S SUPPORT +

Pages

  • 3
  • of 20

Pages